Rebecca Fletcher . Powered by Blogger.

A Health Update: M.E & Fibromyalgia #InvisibleIllness


Good morning! I had a post lined up for today but I haven't had the chance to take photos for it in the daylight so I thought it would be a good time to do a health update instead.

Its Sunday evening as I write this and Im lying in bed under my heated blanket, in pj's, my hair is tied up in an awful bun and hasn't been washed in 4 days so just imagine how greasy it looks. Im drugged up to my eyeballs with painkillers and I haven't left my house since Tuesday. Perfect Sunday evening, am I right?!! Anyways all joking aside, Ive actually been suffering quite a bit over the last few weeks with my health. As most of you will know I was diagnosed by the most ignorant doctor who left me crying and feeling hopeless after my appointment with Chronic Fatigue Syndrome (also known as C.F.S/M.E) and Fibromyalgia back in 2015 (I think) but Ive had health problems since I was 12 so thats a solid 8, almost 9, years of struggling. Im not saying I was ill that entire time but I've definitely suffered on and off mentally and physically since then. I have a gluten intolerance so Ive been on a gluten free diet for around 5-6 years and I have a slight intolerance to dairy.

Back at the beginning of September I wrote a post about living with M.E and everyone was so kind about that post so thank you so much for that. You can read it here if you would like. It really cheered me up and realised how nice everyone is so thank you again for that. :) I feel like I didn't do the greatest job of explaining and writing that post because I find it hard in general to speak about it. I know some people probably wont like me writing about it but oh well. You cant please everyone can you?! Some people may think that I put my life on the internet but I am very picky about what I put up and what I talk about like most bloggers. But theres no shame in talking about mental or physical illnesses and I didn't actually realise how many other people my age suffered with it until I wrote that post back in September. 

Basically, Chronic Fatigue Syndrome (M.E/C.F.S) affects over 250,000 people in the UK and  according to the NHS website its "a syndrome that persistently causes fatigue (exhaustion) that affects everyday life that doesnt go away with sleep or rest. CFS is also know as ME, which stands for myalgic encephalomyelitis. Its a serious condition that can cause long-term illness and disability, but many people- particularly children and young people- improve over time." I briefly touched on this in my other post but symptoms can vary from extreme fatigue to insomnia, light sensitivity, depression, muscle and joint pain to poor memory. And honestly the list of symptoms for each individual can go on for days and a lot of people have it ten times worse than I do- poor people! I really do not know how they cope! And Fibromyalgia is a long-term condition that causes pain all over the body and generally M.E and Fibromyalgia go hand in hand with each other. So if you have one you will probably have both. As if one wasn't bad enough..

Generally I have moderate to severe symptoms but I do get some really good days and thats incredible and I definitely make the most out of those days. Ive managed to go on a family holiday this summer and a foreign holiday this past June and I am so happy and grateful I was able to. For the last month or so its the Fibromyalgia thats been affecting me the most so Ive been in a lot of pain. So thats why Im not in uni and I don't have a job if you were wondering because Ive had questions about that before. With how unpredictable my health can be its almost impossible for me to keep a job at the moment and thats the one thing that really does upset me. And do you know what sucks? Some people have told me that I need to just go out and work and thats my problem. *insert huge eye roll right about here* I have one response to that- ignorance...! Its sad because so many people with invisible illnesses arent always believed. So I feel your pain and frustration if someone has said that to you and you're in the same position. I would love to have a full time job. Id love to have the routine of waking up in the morning, going to work and coming home everyday but I cant right now. At this current moment the only thing I have set for every week is a driving lesson on Tuesdays and going to Slimming World with my mum every Monday morning. And thats all I can really cope with. Ive gotten really close to working before but as soon as I get a little bit better it seems to all go downhill and back to square one. This is actually why I started my blog. I wanted to have something to show for my time when I am actually well and its one of the best decisions Ive made. 

With a chronic illness like M.E and Fibromyalgia comes depression. And thats something Ive been dealing with since my mid-teens for other reasons so throw in a chronic illness to that and its obviously going to get a lot worse. Im actually on a high dose of antidepressants and I have been on that dose for around 2 years. I love seeing people blogging and talking about suffering with mental health problem because it makes me feel so much better. There really shouldn't be a massive stigma around talking about it. Millions of people suffer with depression so why shouldn't it be spoken about. Its important to be talked about. But that a whole other blog post and rant for another time! On top of taking my antidepressants I have strong prescription pain killers that have made me throw up before and cause me to act drunk, so thats fun! Apparently I couldn't sit up straight but the pain was gone so that was a plus! HAHA!

On the whole though, I am pretty positive about my illnesses. I use to be such a negative Nancy and I still am with some things but definitely not with me health. I can laugh and joke about it with friends and family and I think thats what keeps me going. Don't get me wrong, I definitely have days where Im just a blubbering mess and I cant see anything past being ill but I have amazing people around me to lift me up, sometimes literally as I have a tendency to faint sometimes..oops. But honestly if I didn't joke about it, Id be in a constant state of depression. 

I hope this post gave you a little bit more of an understanding about me and my health and why Im not always consistent at blogging. And hopefully Ive covered everything I wanted to although Im sure Ive missed loads of things out that I wanted to talk about.


Here are some help and support lines for the things Ive talked about. And of course you can always speak to me about this.

Depression- supportline.org.uk    mind.org.uk

Chronic Fatigue Syndrome & fibromyalgia - fmcfsme.com








SaveSaveSaveSaveSaveSave

2 comments

  1. I'm sorry to hear about your illness and I am totally sympathise because I have it too & chronic Lyme. The ignorance surrounding these illnesses is the toughest part xx

    Beautylymin| Urban Decay Bundle Giveaway

    ReplyDelete
    Replies
    1. Thank you. Ohh I hope you're doing ok. Yup the ignorance kills me! :(xx

      Delete